So, here I am in the hospital, typing away on Microsoft Word so that my husband can transfer my post to my blog at home. What a crazy 2 months it has been.First, our daughter got seriously ill and was hospitallized twice, seen be a few doctors and specialist, and is now having a bone marrow test done next Tuesday. Then one month ago, I discovered a painful lump on my leg. Then, I got the flu shot. One week later, my hands and feet started to get really painful and more painful lumps appeared by the day. Now, one month later here I sit in my hospital bed, stumping the doctors as to what on earth is going on with me. I have strange lumps all over, which I have now been told are definitely not lymph nodes (although a few other doctors said they were). I have had a lot of general pain everywhere, but especially in my legs, which I would describe as a deep aching feeling, although sometimes the pain shoots down my leg and pulsates.I have strange bruises on my legs. I have a constant headache, and pain in my neck and chest when I breathe. My blood pressure has been generally low (107/58), and my pulse has been high every time(100-124). I also have a very tender stomach, even though my appetite is still good. I have a weird sensation of my body shaking (on the inside), even though lots of times I’m not physically shaking. I am exhausted beyond belief. There are just so many strange things going on, the doctors are stumped but they know something is up. It took us several trips to the doctor and a few trips to the E.R. to finally get here. At times I felt like I was going crazy, seeing doctor after doctor, trying to explain how I was feeling, but I just knew something was wrong so I kept being persistent. At least now they are taking me seriously (especially with my wonky blood pressure and pulse and lumps) and they are trying to figure out the cause of all this.
What’s happening right now? I am on a wackload of medications. I’m on a corticosteroid for inflammation in case it’s an automimmune problem. I’m on a bunch of pills for my stomach pain. I’m also on pain medication and anti-virals. So far I am not on antibiotics, but there was mention of possibly starting some in the next while. I have a heart monitor hooked up to constantly monitor my pulse. They are doing a CT scan of my stomach probably on Monday and specifically want to check out my adrenal glands. I’ve had blood taken more times than I can count. When I talked to the doctor today (an internist specialist), she said I’m probably going to be here for awhile. She said she doesn’t know what’s going on, but it’s weird. She said it could be my heart, my thyroid, my adrenal glands, or a weird virus; it could possibly have been the flu shot. On Wednesday night they were worried it could be something like leuekemia since my white blood cells were high. However, my last cbc was normal, so that lessened the likelihood of it being leukemia. Being here for the next few days means that I won’t be able to go up for my daughter’s bone marrow test on Monday. It is SO hard being away from her. I miss her like CRAZY. I miss my home like CRAZY. I miss our normal life like CRAZY. Thankfully, my husband has been able to visit me quite a bit since we have family willing to look after our daughter during a lot of the day. But when he’s gone I miss him like CRAZY too. This is so hard on him, too. It’s next to impossible for him to work since he’s under so much stress with what’s going on with his daughter and now wife. I am just desperate to get home and back to feeling like my usual self asap. Please pray they will figure out what’s wrong with me. Pray for my healing. I feel like I’m going crazy and I miss our normal life so much. Pray for my husband and strength to get through this awful time. Feel free to visit me if you want to. Unless I’m sleeping, I’m up for visitors most of the time.
1 comment:
I have been reading for awhile. I am so sorry for what you are going through. I hope and pray that answers will be found soon and that you will be feeling better quickly.Blessings to you and your family.
Diane
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