Thursday, October 21, 2010

Update for This Week

Just a quick update on our little girl. She is currently getting weekly blood work done, and we just got the results from this week's tests, so I thought I would share them.

Unfortunately, her blood work has not improved in the last week. Her neutrophils this week are down to 5 % (last week they were at 8 %) and her platelets are about the same (still a bit higher than they should be). Obviously we were hoping for more improvement rather than the apparent step in the wrong direction. The doctor isn't really concerned, but it is hard for us parents to not become discouraged and concerned when it looks like things have gone a bit backwards instead of forwards. As for the rest of her health, she is doing fairly well still. Her diaper rash is nearly gone again (other than flaring up every once in awhile). She did get a small cut on her hand yesterday, so we are praying that it will not get infected. She also has a couple of red spots on her face that look like pimples. I am wondering if they might be related to the sty (staph infection) she had recently (the sty is gone now).They don't look too bad yet, so I am just keeping an eye on them for now.

We just so desperately want our daughter to be back to normal and back to living a normal life! Being in isolation is really hard. We want her to be able to freely play (and drool on the same toys!) with her cousin. We wish she could run around outside and play in the leaves and enjoy the fall weather. We want to go out and about, attend church, and do normal things as a family again. It just looks like things are going to take some time to get back to "normal".

We are thankful that we were able to have Bible Study last night, which we haven't been able to do for several weeks. Our Bible Study group is very small (just 4 of us so far) and our daughter is in bed asleep for it, so as long as everyone is healthy we can still have it. It was a great encouragement and so nice to fellowship again.

As a side note, I still have a strange lump on my calf, which hasn't improved at all this week. In fact, 2 days ago, another lump mysteriously appeared overnight on the front of my leg, which is also painful. Maybe it's from doing a little more housework than usual yesterday (or maybe it's all in my head), but today my legs are really sore. Sometimes they were so sore, I was limping around the house. They just feel really achy and tight and sort of like they are burning/tingling at times and that I'm on the verge of getting a dreaded muscle cramp in my calf. Weird. I just don't know anymore. I just don't know! I seriously think I'm going crazy. I need to get out of the house. Thankfully, I'm meeting a couple of friends this weekend for coffee while my husband stays home with our daughter for an hour or two. Oh yeah, and I'm also seeing the doctor on Monday about my leg lump issues.

So, how can you pray?

Please keep praying for our daughter and for our family. Pray that she will improve (A LOT) this week and that the doctor would have wisdom as to whether or not she should see a specialist. Pray that she will remain free from infection. Pray that these weird lumps on my calf would heal and the doctor can figure out what they are. Pray that we will have endurance to get through this as we still haven't been able to get back to what was once "normal" for our family.

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